A new report has revealed serious failings in the provision of paediatric continence supplies across England, Wales, and Scotland, leaving disabled children and their families struggling without proper support. Research by Cerebra, alongside Leeds University’s School of Law and the Parent and Carer Alliance CIC, highlights the lack of clear guidance on dignified and accessible continence care. Many families are forced to cover the cost of essential products, while poor-quality supplies lead to additional expenses, including increased laundry and damage to clothing and furniture.

Children with bladder and bowel conditions are often left with ineffective, oversized products, resulting in distress, embarrassment, and social exclusion. Frequent leaks and odours make them vulnerable to bullying and prevent them from fully participating in childhood activities. Report author Luke Clements, Cerebra Professor of Law & Social Justice, described the situation as a “devastating failure” by health and social care services, urging immediate government intervention.

With 900,000 children in the UK affected by bladder and bowel dysfunction, disabled children are disproportionately impacted. Delays in accessing adequate support leave many in pain, at risk of long-term health issues, and socially isolated. Parents often feel blamed for seeking essential products, adding to their distress.

Lucy Fullard, CEO of the Parent and Carer Alliance CIC, called for urgent action, stating that the ongoing crisis is violating young people’s human rights. Cerebra is demanding clear national guidance to ensure all disabled children receive the continence care they deserve.